These Days

January 29, 2013

It's been one month since I saw my doc.  Three months since my last treatment.  Eleven months since I hit remission.  Yup, that means next month is my one year anniversary.  Wow, I can't believe it's been almost a year since that sweet, sweet day.

I've been happy and (for the most part) healthy this new year.  Despite some colds here and there, I've been noticing every week a bit more pep in my step.  I'm noticing I can stay up later and out longer without becoming exhausted.  I'm back in yoga.  I'm focusing on my diet trying to keep it as healthy as possible... although that totally goes to the crapper if I eat out.  I should start working on that.  I am VERY excited to be regaining feeling in my hands and feet.  They are being hit more often with Charlie horses than before which I find strange.  It's funny how Charlie horses use to take my breath away as I yelled in discomfort to the sky all while flopping around like a fish out of water until they went away.  These days I just roll my eyes and rub my foot until I can feel it again and move on.  We're talking multiple a day here.  It's the worst in my hand when I'm trying to write or cut with scissors and my hand freezes in that position.  It's like a rock that has to rubbed back to life.  But the MOST exciting part of all - I can once again successfully open string cheese!

Just like most tragedies in life, it's taken time to feel back to normal since treatment has ended.  Treatment created a different me.  I was very positive about life, but more emotional about the little things in life.  It feels good to be getting back to normal, mentally and physically.  I don't have to schedule my life around treatment anymore.  Or rely on my sister and friends to help me out.  I'm able to lay around on the couch because I WANT to, not because I'm drained from treatment and have to.  I'm starting to get a grasp on my finances and do not feel stressed about paying bills as often.  It's strange not having my day-to-day routine include cancer, but it's also incredibly wonderful.

Updates and Updates

It's been an incredible 5 months since my last post.  I've had more going on in the past 5 months than I have in the past 5 years.  I'm so excited to share it all with you, but before I do that I'm about to blow up the blog with several posts that I began over the past few months and never completed.  I'll add the dates for a reference of time.  Get ready for some health updates and well as some major life updates.  But to give you a quick summary... I never knew I could be this happy in life. 

Happy Anniversary to Me!

I can't believe it's been a whole entire year since the most amazing day of my life.  I'm so excited to say HAPPY ANNIVERSARY TO ME!!!!!!

I did it! I beat cancer!

I wrote this post on 12/13/12, the day after my post-treatment scans.  For some reason I saved my draft instead of publishing it so here it is, one month late.  But that's okay, because being cancer free means I have alllllllll the time in the world :).

I have great news to share; I am still cancer free :).  Ahhhhh, what a relief!  This means I done.  For real this time.  I don't go back to see my doc for THREE MONTHS.  Holy crap it's been almost 2 years since I haven't had to visit Siteman every 1-4 weeks.  This is incredible.  But along with that it is a bit sad - you have to understand that seeing someone that often who I share very personal details of my life with really does become a part of my life.  It's bitter sweet to not see my oncologist and her team.  I've been there longer than most of them.  They were all so happy for me yesterday when I was scheduling my next appointment for 3 months.  And no scans.  And no treatment.  Just an appointment.  Wow... I've finally made it.

This journey has made me very emotional these days.  I sent a mass text with the good news to a few friends who had been texting me yesterday.  And let me tell you good news travels fast!  Every time a new text came in with words of happiness and joy I teared up.  It means so much to have so many people care for me.  Seriously, sitting here right now writing this is making me tear up.  There have been so many ups and downs I don't even know what these tears mean anymore!  They just come!

So I have to be honest, because that's what I do, I'm not 100% happy yet.  WHO KNOWS what my deal is.  Like I've said before, life after cancer is tough for many.  I have some reading and sharing to do to figure out what my deal is.  But I have a few ideas.

(1) Going to Siteman is like having the red carpet rolled out for me every few weeks.  Everyone is so nice and amazing - who wants to leave that?!  I always loved the compliments that I looked too healthy and young to have cancer.  Who doesn't like flattery?! 
(2) I need to grow up.  I seriously need to get my financial act together and figure out life.  Everyone comments on how marvelous it is to put this all behind me and move forward in life.  But I feel like it's pushing me backwards!   This living paycheck to paycheck on a teacher's salary just so I can keep up with medical bills is down right depressing.  I'm working with a financial adviser so I can actually feel like I'm moving forward in life.  I'm ready to get my own place again.  To return to my comfortable lifestyle.  I see a second job in my future. 
(3) Will it come back?  I don't know.  My doc doesn't know.  Statistics say it's likely.  Okay then, when?  Will it be the Hodgkins?  Will I develop something new from all of the horrible toxins I have put in my body?  Will I start freaking out when it's time for my next scans?  Will there be another treatment for me if I do relapse?  Is the sky blue?  Uggggg, the agony of the 'what ifs'.
(4) I might be done with treatment and scans, but I'm still living with the side effects from chemo.  My stomach issues have only worsen.  The chemo and the acid in my stomach still hate each other.  I'm always having to eat to keep it under control = keep gaining weight.  My doc prescribed some stronger meds so lets hope that helps! 
(5) I have become a broken record in explaining why I'm so tired these days.  First of all, I do not like to be tired.  I get bummed out when I head home after a gathering on a Saturday and am in bed by 9pm.  Second, it's not "sudden" like people have been questioning.  It's been gradual, but I was good at pushing through for awhile there.  This need for extra sleep was expected to occur - it' amazing it didn't start hitting me hard until I hit the 12th treatment.  I'm frustrated because I have friends who are not exactly understanding the fact that I'M EXHAUSTED.  So when I say I'm too tired to do happy hour after work or want to leave a Saturday night gathering by 8:30 do NOT ask me "Why? Aren't you done with treatment?"  Yes, I am done with treatment, but the effects are lasting.  Yes, I was out partying only a few months ago but those days are over - for now.  I need rest.  So leave me be - for now.  I promise, I will return.

I'm still mixed with a lot of emotions.  And a lot of physical annoyances.  But I have to tell you, I'm breathing easier today.  Having these scans behind me has made today that much better.  I thought I was handling the suspense up to yesterday just fine until my nurse called me back in to recheck my vitals - apparently my pulse was through the roof.  Nervousness?  I am SO good at telling myself it's all going to be okay that I don't even realize how stressed I really am.  Of course I cried all the way home.  And I fell asleep by 7:00.  That's right, I slept for 11 hours.  Why?  I have no idea.  Looks like my body was more stressed out about the suspense than I thought. 

I remember writing over a year ago about how scared and frustrated I was feeling.  The journey of being a cancer patient is annoyingly tiring.  All I wanted was to see the light at the end of the tunnel.  Some days it seemed brighter, but others it was looking pretty dim.  Today, I'm stepping out of that tunnel.  I'm out of the dark and in the light of a new world.  A cancer-free world.  I did it!  I beat cancer!

12/12/12

December 12, 2012 is being described as a very special and lucky day.  It's the last time we will see a triple sequence such as this in our lifetime.  So I guess that marks it as pretty cool, huh?  I'm going with the thought that 12/12/12 is going to bring everyone good luck, including myself.  This Wednesday, 12/12/12, is my first round of post-chemo scans.  I was a bit nervous about it when I finished treatment, but I think I've had enough time to sit on it for the stress to go away.  Well, most of it anyway.  I've probably played every possible scenario of what can occur in the doctor's room on Wednesday.  Crossing fingers, toes, eyes, arms, and knees.  And sending a few prayers up as well.  You're all welcome to join me :)

DONE!!

Yup, I'm DONE!!!  It's been 20 months since that horrible phone call.  I cannot believe I've been living this uncomfortable lifestyle for so long.  It is an incredible sigh of relief now that it is all said and done.  It's time to move on in life!!!!

Wednesday felt like my birthday, I was blown away with love and support.  The emails, text messages, phone calls and of course facebook reminded me all day long how lucky I am to have so many people rooting for me.  Coming home to flowers before treatment was icing on the cake :)

I was in tears all the way to school on Wednesday, so emotional and excited that the day was finally here.  Finally here!! I was bouncing in the car as Krissy and I drove to Siteman.  My doctor and I hugged several times, both eagerly excited to say, "See you in 6 weeks!"  It has been almost 2 years since we've been able to say goodbye for longer than 4 weeks.  From my doctor's office I danced all the way to treatment while singing Anita Ward's "Ring My Bell".  While we waited in the treatment waiting room Amy joined us and also had "Ring My Bell" stuck in her head.  Mind you Krissy and I headed to Siteman earlier in the afternoon for an early appointment meaning we were stuck with patient "traffic" and waiting for labs, doctor, and treatment; something we are not use to after being spoiled as the last appointment of the day for the past year!  So at this point Krissy was about to hurt me for continually singing about ringing the bell.  She shared her excitement with DELICIOUS chocolate from ka-ka-o.

Treatment was anything but exciting, especially considering it was Halloween.  Since it was a holiday most of the regular nurses were off with their kiddos.  Treatment was also swamped.  My favorite MA was so busy she barely had a moment to stop by and chat.  My substitute nurse thought I was pulling one on her when I told her it was my last treatment.  I told her a year and a half was enough for me!  It was disappointing at the end when I was done - the nurses are suppose to throw a confetti shower for you and come watch you ring the bell.  These substitute nurses had no idea and my farewell was rather mundane.  But Amy will beg to differ that the biggest disappointment of all was that the hot chocolate machine was broken, ha!  While leaving, my MA chased us down with hugs and tears and the congratulatory t-shirt and certificate.  It was very bitter sweet leaving treatment. 

Krissy skyped Katie and we had a bell ringing party.  The enchanting bell.  It was everything I dreamed it would be.  We headed home and feasted on Rich & Charlies, the best comfort food ever.  In my true style I was asleep by 8:00 and there I stayed in bed for the weekend.  For the last time.  Ever. 

Krissy at the foot of my bed ordering our favorite for dinner - Rich & Charlies.

Ok, so I look rather exhausted these days but it's my LAST treatment!!

Time to ring the bell!

No Longer a Fighter

There are instances in life I find myself taking in a moment feeling invincible.  Unstoppable.  No matter what you throw my way, I have the strength and mindset to defeat.  There was a moment a few weeks ago on a very windy day I was taking a walk around the neighborhood with a few of my kiddos.  A gust of wind blew down the street strong enough to make the kids squeal with glee while we were showered with yellow leaves from the trees above.  An older man was sitting on a stoop nearby laughing with us while everything else in the world seemed to stop.  Everything felt right in the world.  No sadness, no pain, only pure bliss.  It's amazing watching these young children respond to the most simplest of moments that most of us take for granted; or don't even notice.

There's a song on the radio that gives me the same feeling.  The song is not about cancer patients, but any cancer patient sure can relate to the lyrics.  Gym Class Heroes featuring Ryan Teddy: The Fighter.

Until the referee rings the bell
Until both your eyes start to swell
Until the crowd goes home
What we gonna do ya'll?

Give em hell, turn their heads
Gonna live life 'til we're dead.
Give me scars, give me pain
Then they'll say to me, say to me, say to me
There goes the fighter, there goes the fighter
Here comes the fighter
That's what they'll say to me, say to me, say to me,
This one's a fighter

This song would remind me I'm a fighter.  The scars and the pain only made me want to push harder.  It made me want to show the world that I am strong and I can do this.  It's hell, but I can do it.  I heard the song this morning and for the first time the feeling of empowerment did not overwhelm me.  I wasn't rushed with emotions and determination.  It caught me off guard and I just stood in my tracks as I listened to the lyrics.  Then I smilied.

I'm no longer fighting.  I won.